LIFE Without JANET.............

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Life is CHANGING for me.............

It has been 1 year and 6 months now since the second tragic lose in my life. JANET, who saved me after the first lose in my life of JOAN, how could it have been this long ?

It has been a struggle I must tell you, to move to a place where I want to go on living. That is still in question. Several people have entered my life during that period since Janet's death. All have been very caring and very supportive. Without them, I'm not sure I would be here to write this.

On June 11th of this year I was told that a Biopsy, taken a week earlier, of my Left Tonsil was positive for Squamous Cell Carcinoma HPV. Although the doctor told me it was not a death sentence, and was treatable, I just was not sure I cared. I have seen so much of this Cancer thing in my life, at 75 years old, it was hard to know if I felt like dealing with the battle.

The woman that I had met through correspondence, and was then spending time with when this occurred, Sheila Thompson-Ockey, was not willing to accept those thoughts, on my part, and urged me to fight it. We had become very fond of each other,  over several months and found ourseves caring very much for each other. I am still trying to imagine why she would want to become involved with this mess (me), but am very happy and fortunate that she has.

We both traveled to Houston in mid June, to MD Anderson Cancer Center of the University of Texas Medical Center for consultation with the Head and Neck staff of doctors there. After their review of existing diagnoses and images, and their own scans and exams, they concluded it had been found early and was...

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Post No. 46

                                      Tuesday, May 22, 2012

It's me, back again, just wanted to post a few pictures from yesterday when I visited Janet's gravesite in Bolivar.

I am here in SW Missouri at Stockton Lake, 30 miles west of Bolivar, MO. I left the house in Arizona on Sunday, May 6, 2012. I will be making The Journey for the forseeable future. I am living in our 5th Wheel RV Rig, our home for the last 15 years.

RV at Stockton Lake - Current

I must tell you that I am NOT doing very well, nor do I expect to. Janet having to die, and not be able to fulfill her life's expectancies and feel the joys of those plans is totally unacceptable to me. She died less than 5 years after her Dad died, and her Mother is still living. That is not right, just not right. She deserved better than that ! !

Janet's Gravesite with our Truck

Janet's Gravesite Monument

I will Decorate Janet's gravesite on her Birthday, May 27th and again on Memorial Day May 30th.


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Post No. 45

                  Tuesday, January 17, 2012

The funeral, yesterday, went very much as JANET had planned it. I did my very best to assure that her wishes were fullfilled. She was laid to rest in the spot she had picked, there in Greenwood Cemetery, Bolivar, MO, with friends and family surrounding her. It is peaceful there, and many times so beautiful as the seasons change one following the other. 

We thank you all for your wonderful support thoughout our battle that was lost on January 12, 2012, I am sure you realize that the words that I am hearing are not helping much, although greatly appreciated. The pain of facing life without JANET is devestating me. No words have yet provided any relief from that devastating pain that has decended and has a powerful grip over me.
I have no idea how I might go on beyond this tremendous loss. I am missing the person who has made my life worth living these past 16 years. I am facing the worst part of my life, and I am not equipt to deal with it. In fact, I really am not wanting to.
I know that I must, as JANET had me promise, to her, that I would, I would do nothing to hurt her. However, I fear that she had no idea what that might look like. The pain that she endured the last 2 weeks of her passing was far more than she could have ever imagined. I truely felt the pain as I lay next to her night after night holding her in my arms. That image burns in my mind and is forever etched there.
I know, in my heart, that you would all like to help me, I can hear it in your words, and they are coming from your hearts. I can only pray that there is someone...
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Post No. 44

                  Sunday, January 15, 2012

JANET's funeral has been scheduled at Butler Funeral Home here in Bolivar, MO. Visitation will be today at 3:00 - 5:00pm, Funeral services will be tomorrow, Monday, January 16 at the funeral home.

Please visit the funeral home Website: www.butlerfuneralhome.com   where you will find JANET's Obituary with more detail.

I have been under a lot of stress here and should have had this to you folks sooner. I might add that I am not doing well, and will need a lot of help to get hold of this. I LOVE her so very much, my heart is aching with so much pain.


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Post No. 43

                  Thursday, January 12, 2012

Want to let you all know that JANET passed away this evening at 6:13pm CST here in Bolivar, MO her hometown.  We put up a good fight, but the Beast won.

I will Post the Arrangements we make, in the morning, here, as soon as I can.


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Post No. 42

                      Monday, January 9, 2012

We are on a roller coaster here. She is up and down. Down last night, I slept with her in Hospital bed, but she has times when she is not Janet. She dreams, and then wakes up somewhere else and is somebody else, does not know me, and is talking "crazy". She is wanting to do things she can't do, so I have to talk her through it, but last night nothing worked. Nurse says it's the disease, I think it's the meds, but actually no one knows. She can be very strong during these times. Hard to control if she wants to do something where she might get hurt. Bowels, although restricted are still functioning, so sometimes you can think that we may see a miracle.

Worst part is that she does not get much sleep and is continually moving, and I don't get any sleep either, must be alert for any changes. Eats virtually nothing, drinks very little. Both make her vomit which is very painful. The vomiting comes from her bowels and not the stomach alone. No one knows where this is going and when. It almost takes two people now to keep her comfortable. Mostly, the pain seems to be controlled, but only she knows that, and communication is getting somewhat strained. All speech is a whisper (very hard to hear, and very difficult to understand).
Please pray for her, she is frustrated, with the process and God.

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Post No. 41

                    Monday, January 2, 2012

I fear that Janet is getting close, she has vomited every morning for the last three. She gets weaker by the day. Eats very little and her mind is getting very foggy, can't focus well. trouble with recall. She is however, still communicating with me, and still swallowing, both good things.

We are sitting here watching the Rose Parade on HGTV (commercial free) it's very enjoyable, we are reminiscing our trip, with Sue and Don Townsend (Rving friends) back on New Years Day 2000 Millennium (our 3rd Wedding Anniversary) to view the Parade. Actually, right about the spot where HGTV does there Telecast there on Orange Grove Blvd. This is an event that Janet just loves to watch, one of the big times in our travels was this trip to view the Parade. Janet's family history is in flowers, from her grandfather Teters Nursery, where she spent many hours helping her grandfather with the bedding plants, to riding with him in the delivery truck all over the Ozarks. Her father followed in the tradition by starting the Teters' Floral business where they developed and produced some of the most real artifical flowers to date. Her father worked with the Chinese factory, actually in Communist Red China, to develop these flowers. Janet traveled there with her father many years ago. SO, this Parade is close to her heart, and she thoroughly enjoyed watching today.

None of us know when Janet will pass, she feels soon. I will stay in touch with you all. Please pray that her passing is comfortable and her welcome into Heaven will be glorious.


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Post No. 40

                                  Friday, December 30, 2011

Janet gets weaker each day, doesn't eat much, just small portions several times a day. Nurse says she is not expending much energy so body does not demand much food. Had a good visit with her Hospice nurse today. She got me squared away on the Meds.

She still does everything for herself, sleeps a lot. We just took a ride in the car around town for abour 45 minutes and watched the sun go down. Pretty day here in SW Missouri.

We'll be watching the Broncos, hopefully beat the Chiefs this Sunday. Probably not going anywhere in the Playoffs if they win this game, but will be fun to see them get there anyway. Janet has become a big Broncos fan over the last 16 years. However, still loves to watch her grandson play for her high school football team, here in town, The Bolivar Liberators.

Janet has received confirmation, from our wonderful singing friend, Haley Hawkins-Toomey, down in Branson, that she will sing "Go Rest High on that Mountain" (song written by Vince Gill) at her funeral. She has her funeral plans almost complete now.

 


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Post No. 39

                                 Thursday, December 29, 2011

Hi everybody, I have heard your cry for information about Janet, There certainly has been some events in our lives since reaching Bolivar, and this lovely home that has been graciously provided by Janet's aunt Rosemary and uncle Al.

Janet had spoken with Dr. Shunyakov's office and gotten her appointment moved up to Tuesday from Thursday as you all know from the last Post. In order to have data for Dr Leo to review we spent Monday phoning the AZ MD Anderson people to get the CT scan taken there and the accompanying report sent to Dr Leo. What a hassle, CT scan had to be mailed, no overnight available, report was FAX'ed.

After getting set up here in the house, Sunday and Monday (Dec 18, 19), we found ourselves, Monday night, after going to bed, suspecting Janet might be having an obstruction. We went to ER around 12:30am, after taking a CT scan they felt she had a slight obstruction (CT was good thing as it gave Dr Leo what he needed for review of Janet's situation) before meeting with us.

It was arranged for Dr Leo to see Janet in the Hospital on Tuesday instead of the scheduled office appointment. As it turned out, Dr Leo had little to offer Janet beyond what Dr Wolf at AZ MDA had offered. He did suggest that she have another fluid removal to provide a better level of comfort.

SO, Janet chose to enter into Hospice. Janet was released on Wednesday after Hospice folks came in the room at the hospital and we did the paper work. Her Hospice nurse came to the house on Thursday, Dec 21 and we talked about how all that works. There primary goal is to keep Janet pain free, or at a very low...

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Post No. 38

                                       Wednesday, December 21, 2011

We arrived in Bolivar, MO (Janet's hometown) on Saturday, December 17 around 4:00pm. Janet was able to be comfortable for 95% of the trip. We had a couple difficult times, managing her pain meds was challenging, and getting in enough walking to motivate her digestive track to process gas, etc was also challenging.

The house here is very comfortable, we are so fortunate to have this house, provided by her Aunt Rosemary and husband Al, who live in Norman, Oklahoma. Shortly after we arrived we were visited by her girlfriends, most from high school, others, friends made throughout her life in Bolivar. Those ladies, along with Janet's daughter-in-law Melissa had spent the day cleaning the house and decorating it for Christmas. They washed the linens, made the beds and also had stocked the kitchen with food (homemade soup, cookies, sweet bread, milk, etc). Address here is 908 N Main Ave, Bolivar, MO 65613.

We have spent the last few days getting settled in here, and have become very comfortable. The house is less than 3/4 mile from town square, right at the same distance from the Hospital and Cancer Center and a block from the nursing home where Janet's Mom has been for the last 10 years. We have visited with her Mom and her Mom's boyfriend, of 16 plus years, there at the home.

Janet gets weaker each day, yet we still hold out hope for a Miracle. We see Janet's oncology doctor here, in Bolivar, tomorrow. He wants to review the CT scan and report that was done at Banner Gateway - MD Anderson. We know that MDA is great, ranked No. 1 in USA last 6 years, but we are hoping that Dr Shunyakov might just see something they missed or that some common sense might...

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Post No. 37

                               Thursday, December 15, 2011 

The news is not good. On Monday, Decmber 12th, the doctor told us that they could do no more to stop the cancer Janet has and it continues to grow. She has a short time, so she wants to be in Bolivar, MO, her hometown, with family and friends there. We are leaving this morning, from our house in Florence, AZ and driving there in the car. We have a place to stay and will be there as long as this takes.

Please think of us as we love and comfort each other through this time. Maybe say a little prayer that God takes Janet into His arms and makes this a comforting process.

 Stay in touch with us....

I will provide more details once we are settled in at Bolivar.


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Post No. 36

                                  Wednesday, December 7, 2011

We are using this Post to confess to everyone, and especially those who we have not been sharing the truth with, that we did not make it to Springfield/Bolivar as planned on Sunday morning. Instead, in view of the pains that Janet was experiencing Saturday night, we went to Banner Gateway Hospital's ER on Higley and US 60 in Gilbert, AZ knowing it is supporting MD Anderson's (MDA) facility here in Arizona.After a few hours and a CT scan being taken (much like it would have been in Bolivar the up coming Monday, but without the 2.5 hour flight) Janet was checked into the hospital. The experience here has been very good. Janet was place in a room on the 5th floor where MDA patients are cared for.We have been in communication with Dr Wolfe's, (her Oncologist to be) people including her PA who has visited with Janet here in the room. Dr Wolfe is still in Houston at the MDA facility there until Monday, December 12th when Janet has an appointment at 8:00am.

Dr Wolfe is aware of Janet being in the Hospital and has, in fact, reviewed her case and communicated with doctors here through her PA (all unoffical), since Janet has not yet became her patient until Monday.

We are being discharged as I write this, and will return to the house in Florence. Janet will be prescribed pain medications in the event she needs them. Her pains are under control.She does have a couple masses that seem to be putting pressure on areas in her abdomen that are causing her pain and loss of appetite along with feeling of being full.

We will apologize, personally, to all those who we were not been totally honest with though out this...

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Post No. 35

                             Sunday, November 27, 2011

Well, we have arrived in Florence Garden and our house. Although the weather is wonderful, and our friends, who have been supporting us all through this trial with Janet's cancer, are a comfort. Janet continues the fight as her Blood Marker numbers continue to increase. As we know that marker is indicitive of many different things, yet she is still uncomfortable and is becoming tierd very easily.

The next treatment had to be scheduled in Bolivar, MO (Tuesday,December 6th), as we have not been able to get an appointment with MD Anderson's Dr. Wolfe in Gilbert, AZ until December 12th. Preliminary talks with her nurse and scheduler seem to indicate that they may not be able to get the current drug Alimta approved. There are some things we are going to suggest about the approval process, so we may be able to get that done yet.

Janet is scheduled to fly back to Spfg, MO and on up to Bolivar on Sunday, December 4th. They are scheduling a PET scan if they can get it approved, if not they will do a CT scan. Her Chemo will be on Tuesday if it is a go. She will be returning on Thursday, December 8th to Florence.


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Post No. 34

                            Sunday, November 6, 2011 

Well folks, We think we finally have a definitive set of events, with Janet's Chemo treatments and our travels to Florence, AZ. 

 The issues were where could Janet get the Chemo drugs the doctors feel she needs for this Third Round of therapy. Seems the drug is Not approved by Medicare for treatment of Primary Peritenial cancer in all areas of the country. Of course we knew that it was authorized in Bolivar, MO but were unsure about Gilbert, AZ which is where MD Anderson has affiliated it's self with Banner Hospitals. Actually we are still in talks with them, but have been assured the drug will be approved for Janet's treatment there. 

 We are looking at being there, in Florence Gardens, Nov 21 or 22, leaving Enid Lake, here in Mississippi, week from this morning. Heading to 20 miles north of Little Rock, AR. We'll park there Nov 13th and stay overnite in the RV, then leave by Car for Bolivar, MO where Janet will get her 2nd Chemo of the 3rd Round on Nov 15th. The following day, Nov 16th, she will get the WBC booster shot, and we head back to the RV in the smart Car. We load up car, sleep overnite in RV again, and leave for Dallas area the next morning. That will put us in Wylie, TX on Nov 17th. we will stay overnite and be back on the road morning of 18th heading across Texas on I-20, we'll be on I-10 just west of Pecos.


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Post No. 33

                 Thursday, October 20, 2011

As you know, we have been waiting now two weeks for Janet to have a PET scan here in Bolivar following her Second Round of Chemo Therapy. The PET was performed on Monday, October 17th and we received the report from the doctor here in Bolivar yesterday. It was not what we wanted to hear. More small tumors have developed in her Abdominal Cavity in the Peritoneal fluid. There still does not seem to be any attachment to any parts of her body.

We are waiting for feedback from Dr. Colman, her doctor at MD Anderson in Houston. All the data and reports were sent to him yesterday. This activity seems to be consistant with the increases in CA125 blood marker that we have seen.

The Dr "Leo" here in Bolivar has suggested a Third Round of Chemo using a different drug to put with the Avastin which he likes for the cancer that Janet has, so we will see what Dr Coleman thinks. However, right now Janet is scheduled to have the 1st treatment of the Third Round here in Bolivar on Tuesday next week. Which we will do if Dr Coleman is in agreement.

Our plans have, of course, changed. After treatment here (pending Dr Coleman go ahead) we will see if it will be OK to get the 2nd and 3rd treatments at MD Anderson-Banner in Queen Creek, AZ. If that is OK'ed, then we will shorten our stay in StL and at Lake Enid, MS and head directly to our place in Florence, AZ trying to arrive for Janet's 2nd treatment before November 15th.

Again, and always, we find it so comforting to have the support of our family and friends. Your thoughts and prayers do provided us with warm wonderful...

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Post No. 32

              Thursday. September 29, 2011

I am sorry about not posting since the 17th. However, the only things that have occurred since Sep 17th, are a couple of doctor visits for blood tests. The tests have all been good, last one, on Tuesday, Sep 27th, reflected a very good WBC of 15 plus, which is pretty good for a person on Chemo, pretty good for anybody, actually.

 janet continues to feel very good (some afternoon fatigue) and she looks great. As stated in her Blog, she has lost weight, about 35 lbs, some of which she lost before/during surgery, due to loss of appetite. The last CA 125 blood marker test showed it still on the increase, now at 370. however, both her nurse, Barbara, at MDA, and the doctor's PA here in Bolivar, have told her that it just is not always a true marker for many people (I wonder why they still use it, but we are hearing all kinds of conflicting info about the PSA for Prostate too), anyway she has relaxed about it now, having heard that from two different sources now. We really appreciate everyone's concerns for Janet and all the thoughts and prayers that we feel coming our way, from out there. The last Chemo of this second round is coming up on Oct 4th. Then the Nupregen (sp) injection, which usually makes her big bones (pelvis, shoulder blades and femurs) ache, due to the stuff forcing them to release WBC's.

October 7,8,9 we will be attending my 55th High School Class Reunion in Ottumwa, Iowa. We will stay with a classmate of mine, then return to Bolivar on that Sunday. Plans are still to leave Oct 24th for St Louis, and visit with my children and grandchildren. We have reservations for 2 weeks on...

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Post No. 31

            Saturday, September 17, 2011

Hi folks,   Have been a little late these last two posts, however many times no news is good news. Such is thie case this time. Janet has here 2nd Chemo treatment of this Second Round, here in Bolivar on last Tuesday, September13th. All went well, the Avastin was administered in 1 hour this time, and so far the side effects have been no different than at the 1.5 hour rate. She has had the same results from the WBC booster shot, some aching in the large bones, as they release the WBC. Her WBC count was normal brior to her last treatment which is very good. The next Avastin infusion will be at the 1/2 hour rate. So, we will see how that goes on October the 4th.

We are hoping for a PET scan to access the results of this last round of Chemo around October 25th, and then we are off to StL for some time with my family before heading to Arizona, via Enid, MS; Abita Springs, LA and Houston, TX.

Football is going well here for Janet's two Bolivar grandson's. VArsity team has won their first 3 games, they have had only 7 points scored against them, while scoring a total of 200+ points. Her oldest grandson has been able to play in 3 quarters of each varsity game due to the difference in scores in all games. He is getting lots of experience. The younger grandson is playing 4th grade YMCA football and having a great time as their quarterback. Two games today at "Y", then a Jr Varsity game in Holister, MO Monday evening. We will spend the day in Branson before going over to the game that evening.


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Post No. 30

                                        Friday, August 26, 2011 
Janet had the first Chemo of her second regime this past Tuesday. She is getting her treatments here in Bolivar, a different protocol with one new drug along with the Avastin, which she only had one dose of, during the Clinical Trial at MD Anderson. This different protocol is supported by Dr Coleman at MDA. So, mostly new stuff than before. We are hoping this is very effective.
This is the third day after treatment and, as usual, when the Steroids have worn off, she is having a weak day. Of course, as usual, she had her WBC booster shot yesterday, and we walked a mile at a 3.5 mph pace last evening at the YMCA here in town. The weakness is pretty understandable and typical.
We are heading off to Neosho, MO, in a few minutes, where her grandson will be playing the season opener with the Bolivar High School football team.
The current Protocol will be Avastin and Taxotene every three weeks, the Avastin was administered over 1-1/2 hours this first time, it will be reduced to a 1 hour period the second time, and reduced again to 1/2 hour the third time. This should all take 6 weeks total. So, she will finish up this second regime mid-October.
We are heading toward Arizona end of October, via St Louis, MO; Lake Enid, MS; Abita Springs, LA; Houston, TX and Deming, NM. Should be in Florence, AZ by Thanksgiving.

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Post No. 29

                                   Friday, August 12, 2011 

Howdy to everyone,

Let me start by saying, dispite the news we got this past Wednesday, which was not what we would have liked, the PET Scan showed that Janet has developed 3 very small tumors (around 0,1cm in size), Janet and I are both very optimistic and very POSITIVE as to the outcome of all that is going on. Her doctor, nurse and Physicians Assistant are also very Positive. Dr. Coleman stated on Wednesday that, "They have many tools to work with and we have just began".

I hope you will foregive us for being a few days late with this Post, we first had to digest what has happen, for ourselves, then get our heads on straight about what was ahead. Of course, we are traveling in our car, without our home, and living in various places. Fortunately, Janet's nurse, Barbra was gracious enough to let us stay with her while in Houston. As usual, on our way to Houston we were again welcomed into the home of Jim's first wife's sister and her husband in Dallas. The remainder of the time we have been living out of a bag and staying in one motel after another. We have been on the road for 10 days now, and will be a total of 2 weeks by the time we arrive back in Bolivar. To say the least, it has been HOT everywhere we have been of late.

Now, for the nitty gritty on the test results. Janet's Blood Count (CA-125), continued to go up. Last time it was 60.7, up from a low of 30.35, this time two weeks later, it continued up and was at 151.74  Three small tumors have developed from the "dust" cells which were existing following surgery. These exist in the...

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Post No. 28

                                                    Friday, July 22, 2011

Well folks, Janet's tests and conference with Dr Coleman did not go as smooth as we were hoping for.

The CT Scan was inconclusive and Dr. Coleman needs a more precise look at an area that could be Infection or Tumor. He has ordered a PET Scan which should provide enough information that he can decide what it is and how to treat whatever it is.

Janet's blood test, called a CA125 was elevated again this time, up to 60, and Dr Coleman said that infection can cause that. Naturally we are hoping that infection is what it is.

Next weekend we will be traveling to St Louis for a birthday get together for Grand daughter Randi, Jim's son Jeff's youngest daughter, she will be 13 years old. We'll also be getting together with a few of Jim's work/bowling/softball friends while there.

Janet has been interfacing with many of the folks around here in Bolivar. However, It's been so hot that doing anything is very, very uncomfortable. We are seeing temperatures well above 100, with heat indexes running around 110.

Janet's PET Scan is scheduled in Houston on Friday, August 5th. So, we will be off on another trip to Houston on the 3rd. As before, we never know how long we will be there, or what we will find out. You can be assured we will keep all of you informed as to what is going on.

As in the past, we thank all of you for your continued thoughts and prayers. I assure you Janet and I appreciate each and every one of them.


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Post No. 27

                                                                     Sunday, July 10, 2011

Well, howdy folks,

It's been a while since posting a report here, so for that I apologize.

First things first, Janet is doing very well, she has finished the Standard Protocol which consisted of 6 Chemo treatments at 3 week intervals. However, if you recall, she started on a Phase II Clinical Trial and received one Standard followed by two Chemo Therapy treatments at one week intervals, doctor kept her off Chemo for two weeks for healing, then she received the Trial "Triple Header". Healing did not go well and she was placed on Standard Protocol. The healing went very well after that, and she finished the Chemo treatments on Jujne 29th.

We left Houston earlier than planned, as Janet's first husband died July 1st in Missouri and she wanted to support her children in their father's death. So, we left Houston on Saturday, July 2nd and arrived (after a long HOT trip) in Bolivar on Sunday. July 3rd. He was buried on July 5th.

We are now located on our RV site here on the farm in Bolivar. We will be traveling to KC tomorrow for repairs on both smart Cars. Then on next Sunday we will head for Houston and Janet's Check-ups and a report from her doctor as to her status and any follow up treatments that he might see as necessary.

Plans are to stay through October and leave for northern Mississippi late October. We will travel on to Louisiana after a couple weeks there and spend a week in Louisiana before going on into Houston for check ups.

We will probably be in Arizona late November and plan staying for the winter.

Please continue following us here on our site. I will Post at least monthly, or more often as things develop. Your...

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Post No. 26

                                                    Thursday, June 9, 2011

Janet completed her 5th Chemo yesterday with no difficulties, the 6th, and last of the Standard Protocol, will be on June 29th. Tomorrow will be the WBC booster shot with that she will typically experience achiness in her bones. However, we have found that it works, Her WBC count is always boosted, This past WBC reading was in the Normal range.

Tomorrow, after the shot, we will take in the new movie release, "Super 8".  Then home to relax and deal with the aches.

For those of you trying to keep up with our schedule, there has been a change. After Janets 6th and last Chemo there will be a 3 week wait for the final testing part of Standard Protocol. So, the tests will be on July 20th, not sure how many days will be involved. With that amount of time between the last Chemo and the tests, we are planning to head north to SW Missouri and our RV site at the farm in Bolivar, then drive back down here to Houston for the testing.


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Post No. 25

                                                       Friday, June 3, 2011

Janet's next Chemo treatment will be this coming Wednesday, June 8th. This will be the next to last (June 29th) of the Standard Protocol. As I have mentioned, Janet's doctor is talking about a follow-on treatment that he likes. More on that when we finish the Standard, have the check-up and the associated tests. That will take place the week following completion of the Standard Protocol.

We had a good trip to Florence, stayed longer than originally planned to miss the Memorial Day traffic. We left there on Tuesday, May 31st and arrived back here in Houston on Wednesday, June 1st. We stopped overnite in Ft Stockton, TX both going and coming.

While in Florence, we had wonderful visits with Jim's Mom (who has a senior apartment, with assistance, in Casa Grande) and also with several friends who live in Florence. We had a gathering at the local Mexican restuarant, in Florence, to celebrate Janet's birthday, which was May 27th.

There were several items which needed attention while there, cars needed repairs, trees needed trimming, irrigation system needed adjustments and weeds needed to be pulled. We "summerized" the house and Janet got all of her Real Estate changes, that needed to be made, taken care of.

We are looking forward to leaving Houston and traveling to our RV site on the farm in Bolivar, which is in SW Missouri, it will still be hot and humid, but not as much so.


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Post No. 24

    HAPPY BIRTHDAY - - -    JANET  ! !                Friday, May 27, 2011

Well, it's been a while since I have Posted here on the Blog. For that I am sorry. To explain, we hit the road for our place in Arizona right after Janet's Chemo treatment on Wednesday, May 18th. There is now a 3 week period between Chemos under the Standard Protacol. So, we needed to close the house for the summer out in Florence, had the time, so that is where we have been this week. Scheduled to leave here on Sunday morning to drive back to Houston.

Janet and I are doing remakably well, she is tolerating the Chemo treatments very well, her doctor is looking at follow on treatments after she finishes the Standard Protacol, which she will wrap up after two more cycles. He is suggesting the use of Avastin, which was the New drug in the Clinical Trail she was in. He and we, feel it provides a very good chance of providing for No reoccurance. In the past, Ovarian cancer patients have experienced reoccurance after 3-5 years. New things have been happening, and will happen in this field. The use of Avastin in Ovarian cancer is relatively new.

We are Not looking forward to the Hot-Humid weather we will experience upon the return to Houston, but we are commited to the fight, and to MD Anderson's superior credintials. Janet's doctor is a major confidence builder. He is not only incredibly positive, but he is a good person, enjoyable to be around.


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Post No. 23

                                   Wednesday, May 11, 2011

 Well, we are still here waiting for something to happen, Next Wednesday, May 18th, is the scheduled next two drug Chemo treatment.

 We have decided that this being "Nurse's Week" and Janet and I having a very wonderful relationship with her doctor's nurse, Barbara, we are taking her out to dinner. We will be going to our favorite, Houston restaurant, Lafayette Cajun Seafood Restaurant and we are hoping she enjoys it as much as we do.

 We will be heading off to Florence, AZ to wrap up some RE business of Janet’s and to close up the house for the summer.
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Post No. 22

                                    Sunday, May 1, 2011

Well folks we have been here in Houston for 15 weeks, and things are moving right along. Janet's surgery, we hope is healing, she has had seven Chemo treatments. Doctor says that Janet's CA Antigen 125 is significantly improved. We are very encouraged by this news.

This past Friday Janet was given a different shot to enhance her WBC count. This injection has caused her much more discomfort than the three shots she got a week or two ago. She is going to speak to her doctor about it. Her WBC count is not really bad and so we are not sure she needs this. This past week was a substitute doctor (Janet's was on Jury Duty) and a new pharmacist.

The weather here has been a little warm and humid, we expect it to get much worse before we leave, which now looks to be end of July. We are not in a hurry to get to SW Missouri and all the storms that are around there now.

 Next Chemo will be on May 18th and then we are planning to drive out to Florence so we can close the house for summer.

 


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Post No. 21

                                       Thursday, April 21, 2011

 Well, Janet's White Blood Cell (WBC) count was up yesterday, and OK for the Chemo, BUT the Chemo, especially the Trial Drug "Avastin" (Bevacizumab), has caused the healing of her surgery to be impeded. So, the doctor has removed her from the Clinical Trial which contains that drug, in the interest of healing.

 She will now be on the "Standard Protocol" which is the Paclitaxal (Taxel) and Carboplatin and only administered every 3 weeks. The doctor did say that if she heals satisfactorily he would include "Avastin", the Trial drug, in the last two cycles. This made us feel better about not being in the Trial.

 She is getting 3 injections of Neupogen, yesterday, today, and tomorrow. It's a drug that stimulates the bones to produce White Blood Cells. Also, helps prevent the risk of infections. It is causing her some pain in her bones, especially the larger bones (pelvis, femur, shoulder blades) which produce the most WBC.

 We wish this was going smoother, but actually is smoother than it could be. We are going to be here for some time yet. We are now looking at last week of July.


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Post No. 20

                              Friday, April 15, 2011

Well, a touch of sad news, Janet's White Blood Cells (WBC) decided not to come out to play on Wednesday, and they Cancelled her Single drug (Taxal) treatment due to the low WBC count. They want her to have a 1.0 count and she had 0.75.

So, we will let her rest and hope the count comes to the Party this next Wednesday. That is scheduled to be the "Triple Header" again, this is the one we really want.

Taking a little trip this weekend, running over to San Antonio where we will check out the River Walk, Janet loves that area. Also, going to visit one of our friends, from our summer place in Nathrop, CO, who lives there.

Thanks again, so much, for all the thoughts and prayers all of you send our way ! !


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Post No. 19

                                      Tuesday, April 12, 2011

Janet has had a very typical week coming up on her 6th Chemo, the 2nd Single drug Chemo tomorrow, since the Three drug treatment on March 30th. As I was saying, the Triple Chemo did leave her weaker than any time before. However, the subsequent Single drug treatment last Wednesday was pretty much as before.

She seems to be tolerating the Chemo better than expected, and barring white blood cell counts getting too low, we think we are going to get through these next 13 OK. I think I have mentioned before, it seems to me we might see some effect from the accumulation over time, but that remains to be seen.

There is one issue with the Clinical Trial that will be a test. Besides the New drug, they want to see, at what rate patients can tolorate the Trial drug being infused. So, during the next Triple drug treatment they will reduce the infusion time from 90 minutes, to 60 minutes. Depending on how Janet tolerates that, they will reduce the infusion time to 30 minutes.

This coming weekend we are going to take a break for a trip over to San Antonio. We want to spend some time on the River Walk and visit with a friend who we will miss seeing in Nathrop, CO this summer.


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Post No. 18

                                       Sunday, April 3, 2011

Well, the Chemo has caught up with Janet, however I must say that she seems to be doing better than what folks have said it could be. She gets tired easily, but bounces right back. I'm seeing her getting stronger as the week moves on, and she will be better over the next 2-1/2 weeks before the next Triple. She will of course get the One drug Chemo each Wednesday until then.

She is inspired by those of you who have sent cards. She thanks you all. The prayers and positive thoughts, I'm sure, are providing the energy she experiences.

We have been dodging the Final Four traffic this weekend. Golf tourney is about 40 miles NE of here. We will get out for a drive and some fresh air pretty soon this afternoon. The rest of the day, Monday and Tuesday left for rest.


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